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So the sixth doctor has a new theory about my chronic neck pain. I sought him out because after months of physical therapy, the spasms and vertebrae rotation continue and even get worse at certain times. It's certainly not getting better. Frustrated and weary, I ditched my PC doctor of 6 years and went to someone new. Had all of my medical records faxed to the new office and re explained for the 12th time the same story of the last 3 years when all this started and how it's gotten worse in recent months. I explained that I had no accident or injury and to date nobody has really been able to explain the WHY I get these muscle spasms and debilitating neck pain despite physical therapy, despite chiropractic adjustments, despite pain killers, anti inflammatories, muscle relaxers, heat, electro stimulation, prayer, you name it. I explained my concern that if we don't identify the root cause then we are only treating symptoms that will continue to recur.
Perfect example - I could see the chiropractor every day for the rest of my life- but if the muscle spasms are causing the actual bone to turn, then he can continue to do all the adjustments to my vertebrae he wants but as soon as I go home the muscles will push them back out of alignment. It's futile and quite frankly at $35.00 a pop for co pays, I can't really afford anymore treatments that don't work or only treat symptoms. I need to understand the root fucking cause so they can treat that. The worse part is I've had this sinking feeling for a while now that it's something very simple and basic that could be cured if only they would take the time to listen to my symptoms, evaluate my history and ask me the right questions...like how do you sleep at night? What kind of pillow do you use? How do you sit at your desk? Stupid stuff like that, some daily thing that I must be doing without my conscious knowledge.
So the new doctor examines me and has me open my mouth a couple times. Immediately he said that my jaws click when I open. The physical therapist was there.
"Look at that", the doctor told the PT.
"I think you have TMJ, yes I've seen this before".
"Tempromandibular Disorder, it makes sense because your tempromandibular muscles are all connected to the muscles in your neck and shoulders in the upper trap".
Holy shit, could they finally be onto something here of all places? I mean I've seen every other Dr. in the world. Bone doctors, muscle doctors, neurologists, orthopedists, pain specialists, etc. etc.
He stared asking me more questions.
"Do you grind your teeth at night?"
"Yes"
"Does your jaw hurt?"
"Yes"
"Do you have frequent headaches and migraines?"
"Yes. Yes. and Yes"
"But is it really possible that a dental problem could be causing the actual bone in my neck to rotate?"
It seemed like a long shot. The Physical therapist then had a memory of treating a woman with the same exact problem. Though it's uncommon he treated her regularly for a year and then one day sent her to a dentist and he claims that he never saw her again after that. I suddenly got filled with a feeling of hope that it could be something as simple as all that.
"So how do they fix that sort of thing?"
"They have you wear an appliance".
An appliance? I'm picturing a Maytag dishwasher strapped to my head.
"What type of appliance, it's not like head gear is it?" Now I'm imagining the metal contraption that the unpopular dorky kids in school used to wear.
The PT is young and has a sense of humor. He started laughing and told me when I get it he wants me to wear it when I come see him so he can throw things at me and blow paper spit balls at me through a straw..
Next stop dentist.
I called the dentist office from my cell phone and told them what was happening. They actually had the TMJ orthodontist there and he could see me in half an hour. I went straight away and they ushered me back. Next thing I know I'm in the chair and am being put through a series of jaw / mouth examinations that last about 20 minutes. After the exam he confirmed that I have TMJ but fortunately, it's not the kind that affects the ball and socket joints of the jaw, just the muscle spasms which isn't as bad orthodontically speaking.
"Does that mean I don't have to wear the headgear?"
He laughed, "You'll have to wear a mouth splint but it sits inside of the mouth like a tray".
"Phew!"
"You'll have to wear it all the time in the first 6 weeks, during the day and while you sleep, basically at all times except when you're eating."
I explained that for work I do a lot of talking on the phone and am in a lot of meetings, he said I'll talk differently at first and may take a while to get used to it but it won't be truly effective if I don't wear it all the time.
I wasn't liking the sound of it, not to mention the splint cost $800 that dental insurance doesn't cover. In addition, it may or may not be the cause of all my neck pain but it was sounding more and more like it definitely is a contributing factor. I started thinking about it and it made more sense.
The pain is always bad in the morning perhaps from a night of grinding in my sleep. When I get stressed out at work, I catch myself clenching and when I look at Pugsley sometimes he's so cute that I grit down on my teeth because I can't take it. It makes sense that I've been gritting my teeth more in the last 5 or 6 months since he's had cancer and I've had more worry. It makes sense that when I'm in pain, I clinch and grind even more which creates more spasms and more grinding so I'm stuck in this vicious cycle. It makes sense when I wake up in the morning and sometimes I have the taste of blood in my mouth even though I can't find the source of any bleeding.
At this point I'm willing to try anything so I agreed to be fitted for a splint that takes 3 weeks to come in.
As he was fitting me and taking mouth molds, he lectured me about all the things I shouldn't do because they can aggravate the condition.
No caffeine or sugar because they are stimulants and triggers for the clenching and spasms.
No food that's hard or chewy or gets stuck on my teeth.
No chewing on pens, pencils, biting nails, or holding the phone between my shoulder and ear (I do all of these)
No smoking or sucking through straws.
No stress (yeah right!)
No singing, wide yawning, or any oral movements that would cause my mouth or jaw to be open in an unnatural position for any period of time. Hmmm..... I must have had a puzzled look. At this point, the dental assistant put another blob of blue paste on my lower teeth and had me hold for 2 minutes. While I couldn't speak, the Dentist discreetly placed a "Living with TMD" pamphlet on my lap and opened up to page 9, things to avoid. It had a little box at the bottom of the page that said:
A Note About Intimacy
TMD can disrupt your life in unexpected ways. It can even disrupt intimacy with your partner. Many people with TMD feel pain when kissing. Don't be afraid to tell your partner or try a different form of intimacy until your symptoms improve.
I think he was trying to tell me that blowjobs are out. Totally humiliating.
I sat there with the blue goop conforming to my teeth as I'm being fitted for this $800 appliance that may or may not solve all of my problems. I won't know until it comes in another week and I've worn it nonstop for two straight weeks. After that, if you call me and I sound like the Gorn from Star Trek, making spit sucking noises, now you'll know why. What it may do however is cause a whole new round of problems. Let's see. No coffee, no sweets, no kissing, no JuJy fruit, no biting nails, etc. Might as well just lock me up in a white padded room and force me to listen to Nick Lachey songs over and over and over again. Guaranteed I will lose my fucking mind.












Pugsley: aka, the Sausage.
Lori: Loves Pugs. Writing. Food and Fashion.
coffeypot commented February 13, 2007 1:12 AM
Lori, I grind my teeth and clamp down when I am stressed (can’t so tension outside, ya know), and I do get an occasional headache, but I don’t give blowjobs. So I guess I can survive. You will, too. Three to six weeks of discomfort vs. the rest of your life. No problem. I’m glad you finally have some hope.
Lori commented February 13, 2007 7:32 AM
Just so we're all clear it's the coffee and sugar that will be the hardest things to give up. The rest is just adding insult to injury, literally. Good thing Lent is coming :)
Lori commented February 13, 2007 7:55 AM
p.s. coffeypot, do you wear a nightguard or anything?
davermont commented February 13, 2007 9:32 AM
Robin was diagnosed with TMJ about a year ago, and her appliance helped her a lot. Beware, tho, dogs LOVE those things so watch where you leave it!
SL commented February 13, 2007 10:28 AM
SL, it amazes me that you and I share this freaky ailment. I don't know too many people that have it (or at least they haven't mentioned it).
I yawned the other day and my f_in' jaw locked up again! When it happens it feels like the muscle that resides in my lower chin tightens up. It hurt so bad the tears just kept streamin down my face...
Blindy, the love that he is sometimes reminds me "Its cause you're constantly chewing gum...you were told to stop and you don't so of course this is gonna happen..." nag, nag, nag, blah, blah, blah. I chew the damn gum so I don't have a smokey treat. I'm beginning to wonder which really is the lesser of two evils. A cigarette or a piece of gum.
Hopefully your treatments will work better for you. As always, I wish you well.
YFSL
lisa-marie commented February 13, 2007 1:31 PM
I've had TMJ since college (i.e., a very long time ago); my jaw actually locked sometime during my senior year. I couldn't eat anything that wouldn't go through a straw, and I had jaw, neck and head pain for weeks. I finally got fitted for a night guard, and after the first night I used it, I was able to work my jaw and was basically pain free. I had that night guard (I only had to use it at night, not during the day) for many years, until it became old and gross and I tossed it. Now I just occasionally use one of The Doctor's Night Guard (available in drug stores) when needed. I still clench my jaw, but it's never gotten as bad as college. I really hope this treatment works for you, Lori! There's nothing in the whole world worse than physical pain that won't go away.
coffeypot commented February 13, 2007 2:50 PM
Nah! Just a Trojan every once in a while. And I drink my coffee black. If TMJ meant "Too Much Jaw", then I would say that I am thus afflicted.
Missy commented February 13, 2007 7:50 PM
If it makes you feel any better Missy I have TMJ as well. I don't wear a night guard anymore (Raisin ate it) but I try to be more aware of my clenching so it helps.
I'm going to have to call you now though just to hear you!:)
Lori commented February 13, 2007 7:59 PM
So it sounds like a lot of people have TMJ -- but does anyone else have the muscular disorder kind that makes your neck bones turn??
Enoch commented February 15, 2007 11:50 PM
ROFLOL! The Gorn! I love them! (Yes, I'm a Trekkie...are you Lori?).
I've ground my teeth since I can remember...no TMJ, but Primary Insomnia which can cause it as well. Good luck with the headgear! xP
Samantha commented February 16, 2007 12:02 PM
How sick am I that when you mentioned the pamphlet I thought about no BJs?? I need help. But that means we're on the same wave length.
Feel better Lori! And kiss that pug on the lips for me!
-Sam and Murphy
Enoch commented February 16, 2007 6:52 PM
Hmmm this won't seem to let me post anymore...
Lori commented February 16, 2007 8:02 PM
Enoch -- I had to load a comment approval plug in due to malicious comments and spam. For instance I wrote the word "blowjob" in this entry and not an hour later I had 200 sex spam bots attempt to rape my comments with links to nasty pages. You can still post comments, they just sit in an approval queue now until I'm able to review them.
Yes -- I have to admit not only am I a head gear geek, I am also a trekkie geek. Only the Enterprise original one from the 60's. Didn't care for all the newer ones. The Gorn was my favorite, right up there with the I Harry Mudds and Trouble with Tribbles.
Kay commented March 22, 2007 4:27 PM
I suspect TMJ is the body's attempt to complete a circuit, enhance the body's resources to meet stressful situations. I think the pressure of biting does something to the energy pathways in the head; if the pathways aren't "meeting up", as in the full mouth of teeth are out of alignment, then this tension builds up and gets dislocated to other parts of the body and the entire body, not just the jaw, feels out of whack--day after day after day... Recommended reading: Whole Body Dentistry by Mark Breimer, DDS. $800 for a splint sounds out of line to me. (Do you have dental insurance?) And wearing it during the day-while you are working-doesn't sound reasonable. And is the splint "fixing" the problem? Or just inserting some plastic (which if it's a 'hard' not 'soft' splint) is really annoying to have in the mouth, and just gives you plastic to grind on, instead of teeth. And the big question--was there orthodontia done in childhood? PS If you have 'silver' fillings, note they are 45 to 55% MERCURY and this stuff vapors and collects in ALL parts of your body--including your brain--in proportion to the amount of fillings in your mouth.
Marco commented April 27, 2007 7:43 PM
@Kay: Please do some research instead of quoting New Age magazine nonsense. a) If you eat fish once a week you get tons more mercury in your system than from a mouth full of amalgam fillings. b) night time clenching is not due to mystical energy pathways but a habit that helps secondary teeth to erupt. Theoretically that should stop once you are in your teens but for some 20% of the population it does not. However, age is a factor and the older you are the less likely it is that you suffer from bruxism.
@Lori: That splint was a ripoff. I got one horseshoe splint for $300 and an NTI anterior splint for $500 (that's in San Diego dollars ;) )
You might want to try out the NTI which some dentists claim is a much better solution for TMD caused headaches. Personally I prefer the horseshoe though. Also note that night time clenching is orders of magnitudes stronger than daytime clenching, so after your initial period there should not be a need to wear it during the day.